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Click here to view maps of where the Family Support 360 Centers are located.
Implementation Grantees Contact Information
Alaska
Stone
Soup Group
Mountain View Family Support 360
3350 Commercial Drive, Suite 100
Anchorage, AK 99501
Contact: Barb Chambers, Program Manager, at (907) 561-3701,
barbarac@stonesoupgroup.org
Main Phone: (907) 561-3701
Main Fax: (907) 561-3702
Grantee Website
Mission and Goals
Mt. View FS 360 provides assistance to families raising children who experience developmental disabilities. Wrap-around supports include assistance with prioritizing needs, parent navigation assistance for connecting to vital supports and services, medical appointments, and assistance with housing, public assistance, and State of Alaska Developmental Disability eligibility applications. Mt. View FS 360 strives to find the right balance between providing support and assistance and empowering families.
Accomplishments
Mt. View Family Support 360 has positively impacted the lives of many families, including families who come to us in crisis and families that need help navigating the maze of complicated systems of support. FS 360 has developed and enriched partnerships with community service providers and organizations, homeless shelters, special education educators, and faith-based organizations. Staff has provided trainings on a broad range of subjects, striving to empower families and increase advocacy skill levels.
Positive Impact
A teacher had concerns regarding three students in her resource class. She had each family contact our program, and we were able to provide assistance to all three families—one of which spoke only Spanish. Recent school assessments had related an IQ score for this family’s 6-year-old daughter in the range consistent with mental retardation. The child’s language skills tested as very delayed, and there was concern that she was somewhat isolated. FS 360 staff had meetings with the child’s father and a Spanish-language interpreter. Staff was able to secure summer camp scholarships, enabling the child to attend four week-long language programs. Staff also completed a State of Alaska Developmentally Disabled application for the child and she is now eligible for State services. Staff connected the family with a private speech therapist and the daughter now attends weekly speech therapy appointments.
Colorado
University of Colorado, Denver, School of Medicine/JFK
Partners
Colorado 360°
13121 E. 17th Avenue, C234
P.O. Box 6511
Aurora, Colorado 80045
Contact: M. Kay Teel, Project Director, at (303) 355-8322, Kay.Teel@ucdenver.edu
Main Phone: (303) 724-7680
Main Fax: (303) 724-7664
Project
Website
Mission and Goals
Colorado Family Support 360° is dedicated to connecting Colorado families receiving TANF with disability-related supports and services. Colorado 360° has developed a collaborative model to integrate TANF activities and disability-related supports and services for families who have children with developmental disabilities. The overarching goal of the project is to facilitate systems-level change to identify and address the disability-related needs of TANF families.
Accomplishments
1. Colorado 360° worked with Denver City and County, Denver Human Services, and Denver Options to develop a service collaboration model between the TANF and disability systems.
2. Currently, Colorado 360° is replicating the TANF and disability system collaboration model in three Denver metro area counties: Arapahoe, Adams, and Jefferson.
Positive Impact
Through Arapahoe FS360°, the combined advocacy efforts of the Service Coordinator for Early Intervention and the navigator, a mother was able to receive TANF benefits. She had initially been told she was not eligible for TANF because her infant daughter was receiving SSI. Having TANF allowed the mother to have Medicaid coverage for her own health problems.
Commonwealth of the Northern
Mariana Islands (CNMI)
CNMI Council on Developmental Disabilities
Family Hope Center
P.O. Box 502565
Saipan, MP 96950
Contact: Antonio C. Chong at (670) 664–7040, tchong@cnmicdd.org
Main Phone: (670) 664-7000
Main Fax: (670) 664–7030
Project
Website
Mission and Goals
To serve and support family members of children with disabilities from birth to 21 years in the CNMI. We provide resources and refer family members to service providers according to their Individualized Family Service Plan. We collaborate with service providers to gather information, resources, and training for families with disabilities.
Accomplishments
- Able to reach and serve more than 50 families each funding year on Saipan, Tinian, and Rota combined.
- Families served are very happy and grateful with the assistance and services extended to them by the Systems Navigators.
Positive Impact
Cherry Mae, a 5-year-old girl born with PDD Dos., had not received any assistance since birth. Her parents were beginning to lose hope for Cherry Mae until they were referred to the project. Cherry Mae, through the assistance of a navigator, is now receiving SSI and Medicaid. The family was able to afford safe and sanitary housing and do not have to worry about showering, eating, or sleeping in one room.
District of Columbia
Quality Trust for Individuals with Disabilities
DC Family EMPOWERment Center
3400 Martin Luther King Jr. Avenue, SE
Washington, DC 20032
Contact: Tina Campanella, Project Director, at 202-448-1442, tcampanella@dcqualitytrust.org
Main Fax: (202) 561–1995
Project Website
Mission and Goals
To increase knowledge of resources and supports and assist with the navigation of family centered services, enabling families to achieve full participation in community life by exercising choice and control.
Accomplishments
The Family EMPOWERment Center (FEC) in partnership with the District of Columbia’s University Center for Excellence in Developmental Disabilities (Georgetown University), Parent Training and Information Center (Advocates for Justice and Education), and the State Policy Council on Family Supports are working to build a coalition of parent leaders. A 1-day parent conference was held in September 2006 with meetings to continue throughout the upcoming year.
After an intense year and a half search for space in a rapidly developing city, FEC moved into its new space in September 2006. This 1,500 square foot space is located in Ward 8 which has been identified as the area in the city with the most unserved families who have a child or other member with a developmental disability.
FEC held an open house to showcase its new site. Along with family members, community partners and government agencies, Councilmember Marion Barry was a guest speaker and committed to supporting families in the District of Columbia and the Family Empowerment Center. He has expressed interest in focusing on family support legislation in the city.
Positive Impact
A Family Navigator began work with a single mother who had experienced some difficulties but was charting a new course in her life. Mom was seeking information and training around employment, desired suitable housing, and was unsure of where to turn to access services and supports for her two small children with developmental disabilities. Mom was experiencing significant stress because she believed her desires outweighed the possibilities of success. The Family Navigator immediately connected her with supports to help her gain access to evaluations and assessments for her children, made appointments and secured supporting documentation to assist with SSI eligibility determination for both children, and provided her with community housing resources. To date, this family has secured new housing through a voucher program, both children were enrolled in early intervention day programs and mom has had the opportunity to participate in an employment readiness program. Most recently, mom is finding her voice and has started advocating for herself.
Our positive impact: helping a family understand their ability to navigate the system of services and supports and feeling empowered to do so independently.
Hawaii
Office of Community Services, Department of Labor and Industrial Relations
Navigational One-Stop System: Hawaii 360 Youth and Family Project /
University of Hawaii Center on Disability Studies
830 Punchbowl Street
Honolulu, HI 96813
Or:
1776 University Avenue, UA 4-6
Honolulu, HI 96822
Contact: Rebecca (Becky) Ozaki, Principle Investigator, at (808) 956–9376,
rozaki@hawaii.edu
Contact: Dawn Skaggs, Co-Project Coordinator
at (808) 956–9797, bskaggs@hawaii.edu
Main Phone: (808) 956–4126
Main Fax: (808) 956–6270
Project Website
Mission and Goals
The project is creating a Navigational One-Stop System for agencies and families of Hawaii. All agencies will meet criteria for competency certification and be an entry point to services. The project will serve 50 families each year.
Accomplishments
Over 10 community agencies and programs are partners with the project. Some of these agencies are also interested in using electronic family service plans and working with navigators. More than 200 families have worked with the project. Community and family members have received more than 900 services from the project.
Positive Impact
A family living in a rural community joined the Family Support Project through a relationship with a parent navigator. The family has a son with a disability in middle school, and a daughter with a disability who was a high school senior this year. Since becoming involved with the project, the parents have secured a housing grant, guardianship for their son, and a special needs trust for the future. The mother has become involved in leadership in the local Children’s Community Council and is now a parent navigator for her local community. The daughter successfully graduated from high school. The son has a new and appropriate IEP, receives Medicaid Waiver, and has become involved in local community events with the help of his father. The father has recently hosted the first fathers support group in the State.
Idaho
Idaho Family Support 360 Project
129 West Third Street
Moscow, ID 83843
Contact: Julie Ann Fodor, Ph.D., Primary Investigator at (208) 885–3559,
jfodor@uidaho.edu
Contact: Julie Magelky, Project Director at (208) 885–3566,
jmagelky@uidaho.edu
Contact: Lynn McCollough, Region 2 Resource Center Coordinator at (800) 393–7290, lynnm@uidaho.edu
Shelly Nelson, Region 7 Resource Center Coordinator at (208) 528–5905, shellyn@uidaho.edu
Jill Smith, Family Resource Specialist at (208) 659–1643,
jills@uidaho.edu
Telephone: (208) 885–3556
Fax: (208) 885–3628
Project Website
Mission and Goals
The mission and goals of the Idaho Family Support 360 project is to provide a centrally-based Family Resource Center that provides a broad range of resources for families, service coordinators, and organizations in the area of developmental disabilities. There are two components to the mission and goals: 1) to house a website that is rich with resources, information, contact information, and an easy-access database for those seeking available information on developmental disabilities in their local, regional, or state locales, and 2) to provide coordinated service plans for up to fifty families in two regions by providing resource information and stipends, and leveraging in the community to help families access the services they need for their child/children with a developmental disability.
Accomplishments
The Family Resource Center website (http://www.connectingfamilies.net) is housed on the Center on Disabilities and Human Development (CDHD), University of Idaho’s website. The site is almost complete and when it is posted soon will hold a database of over 1,500 resources relating to family needs in the area of developmental disabilities state-wide.
Over fifty families were served in the last FY in two regions. Many services and leveraging of funds were provided for such things as helping fund families for travel expenses to help with medical appointments/procedures/surgeries; help to fund a lift for a family van; send a family to a conference in California; to help access coordinating services for families living in remote or rural areas of Idaho; provide respite care; or leverage funds in the community to help build a fence to keep a child in or a ramp for a wheelchair; to provide start-up funds for a new-founded community group such as the Palouse Autism Society.
Positive Impact
One story that shows the impact of how Family Support 360 reaches out to families in need starts with a call from a concerned medical professional from a small community north of Moscow, Idaho. A Family Resource Center Service Coordinator took the call concerning an eight year old child with severe cerebral palsy who was not receiving services, such as physical therapy, nor did she have a wheelchair, which necessitated her crawling in order to be mobile. In addition, the family refrigerator was broken and the mother had no income to get a new one. The child recently had her feeding tube removed making the refrigeration of soft foods critical for feeding. The Service Coordinator learned quickly that the child and mother were out of her regional jurisdiction for her to help with funding or services, but quickly called their particular regional Health & Welfare Family Support Department for assistance. Within the day, calls were made and a Service Coordinator from the family's area was sent to make a home visit and determine what action was necessary. Thank goodness that Family Support 360 was known in the state, as in this particular case we were able to cross boundary lines to communicate with other service agencies to help this family.
Maryland
The Family League of Baltimore City, Inc.
Baltimore Families First
2700 North Charles Street, Suite 200
Baltimore, MD 21218
Contact: Tonia Ferguson, Esq. at (410) 662–5500, ext.286, tferguson@flbcinc.org
Main Phone: (410) 662-5500, ext. 286
Main Fax: (410) 662–7616
Grantee Website
Mission and Goals
To provide a face-to-face One Stop resource center for families parenting or caring for a child and or youth with developmental disabilities, mental health or behavioral health needs in Baltimore City. We creatively problem solve to find new solutions through Information and Referral and/or by creating a family strengthening plan, which enables families to be empowered to preserve, strengthen, and maintain their family structure.
Major Goals
1. Improve individual and family support options.
2. Provide linkages of services, support, and resources.
3. Improve individual and family economic development.
Accomplishments
BFF for the first time gave out Mother Day gifts to all of our Mothers so they could celebrate Mother’s Day with our mothers across the United States. Some of our mothers said this was the first gift they ever got for a Mother’s Day.
We have planned our First Annual “WHO WANTS ICE CREAM?” Food, Family, Fun Picnic.
Positive Impact
We have been working with a family with 11 children, including 5 who have developmental disabilities and mental health needs. We found stable housing for this family. The mom has joined our Parent Leadership Council and is an active member. Assisting this parent in getting a job and paying her bills on time has been a huge success for Baltimore Families First.
Massachusetts
Massachusetts Department of Mental Retardation
SC@N 360—Springfield Community Access Network
500 Harrison Avenue
Boston, MA 02118
OR
11 Wilbraham Road
Springfield, MA 01109
Contact: Margaret Van Gelder, Project Coordinator, at (617) 624–7764, Margaret.van.gelder@state.ma.us
Contact: Caroline Wenck, SC@N 360 Family Center Director, at (413) 731–3110, Caroline.wenck@scan360.org
Main Phone: (617) 624-7764
Main Fax: (617) 624–7578
Grantee Website
Project Website
Mission and Goals
The mission of SC@N 360 is to create linkages among a network of human service agencies, service providers, and community resources in Springfield to better coordinate information and support to families who have a member with a developmental disability. Outreach is targeted to lower income, culturally diverse families. The SC@N 360 Family Center provides information and referral assistance to any family who contacts the Center, a resource library, connections to parent mentors, support groups and trainings. Case managers assist families from our designated priority groups to develop action plans to address identified needs and help these families navigate the service system to obtain needed services and resources.
Accomplishments
1. SC@N 360 has sponsored a variety of successful training programs for parents and professionals, including a 6-week intensive course in special education law and advocacy conducted by the Federation for Children with Special Needs. SC@N 360 also hosts a monthly support group for parents. It also held a vacation program during school vacation weeks for children receiving services through the Family Center to provide enrichment activities for the children and needed respite for the families.
2. With the involvement of the Community Partner Agencies, the project is providing services to about 90 families a year on average. The majority of families receiving services are Latino, with Spanish as their primary language. Educational advocacy services designed to assist in the development of more appropriate IEP services was provided to additional families.
3. SC@N 360 was able to secure new funding for the micro-stipend program from the Massachusetts Developmental Disabilities Council. The assistance is available by request to address urgent needs of families for which there are no other resources. It is a great resource for our Family Navigators to have this available to them as part of their “tool kit” in working with families. Receipt of this funding also provides families an opportunity to “give back” to the Center in a variety of ways.
4. The SC@N 360 Family Center has expanded and is creating a new Family Resource and Learning Center. This additional space will enable the program to offer trainings and events that can accommodate larger groups of participants, will house an expanded resource center, and will provide opportunities to rent or share space with other organizations providing services to families which will strengthen our capacity as a network throughout the city.
5. SC@N 360 provided internship and community service opportunities for college students and parents of children with special needs.
Positive Impact
Project staff received a referral from the National Puerto Rican Coalition in Washington, DC, about a Latino family in Springfield with a child with Retts syndrome. The family needed an accessible van. The Action Plan that was developed with this family also included the following needs with which staff assisted the family: accessible bathroom equipment, applications for fuel assistance and other utility discount programs, and clothing for the family. The child with Retts syndrome lives with her single mother and has four siblings including a twin sister who is typical. Project staff completed an application with a local organization, the Brianna Fund, and the family was selected to receive funding for an accessible van and auto insurance. The local television station covered the family’s receipt of the van, which was very exciting for all involved. Project staff is still working on assisting the family to obtain a first-floor apartment. Although the home is ramped, the girl’s bedroom and the bathroom are on the 2nd floor of their present apartment. As the young girl gets older she will be heavier and harder to carry up the stairs.
Michigan
Developmental Disabilities Institute/Wayne State University
Detroit Family Support 360° Project
268 Leonard N. Simons Building
4809 Woodward Avenue
Detroit, MI 48202
Contact: Elizabeth Janks, Project Director, at (313) 577–6368,
E.Janks@wayne.edu
Contact: Angela Martin, Project Coordinator at (313) 577–9470,
Angela.M.Martin@wayne.edu
Tel: (313) 577–2654
Fax: (313) 577–3770
Grantee Website
Project Website
Mission and Goals
The Detroit Family Support 360° Project is a one-stop support center for families with children with developmental disabilities. Detroit 360° can help families in obtaining the supports and services they desire in order to enhance the health and well-being of their families. A Detroit 360° family receives education and mentorship as the family navigates the system of supports.
Accomplishments
- 137 families have received navigation support.
- Through an annual evaluation, families were asked about the extent to which their participation in the Detroit Family Support 360° Project has strengthened their family unit. The mean score for this question was 4.20 on a Likert scale of 1 to 5, where “1” is no extent and “5” is a great extent.
- Received two proclamations from the Detroit City Council for the Detroit Family Support 360° Project’s effort on improving the quality of life for Detroit’s families who have a child with a developmental disability.
- Received $100,000 from Detroit Wayne County Community Mental Health Agency to expand the project’s age and geographic eligibility requirements. These funds are for the expansion of the project and not sustainability of the project.
Positive Impact
K. is scheduled for an intensive surgery to repair the extensive scoliosis that has wrecked havoc on K.’s back. The scoliosis has exacerbated K.’s cerebral palsy as well. The Project was able to quickly assist K.’s mom with navigation of the community mental health system to be connected with respite services for the family during K.’s recovery and other post-operative supports.
Minnesota
Minnesota Governor’s Council on Developmental Disabilities
Jordan New Life One Stop Family Support Center
1922 25th Avenue North
Minneapolis, MN 55411
Contact: Julianne Leerssen at (612) 522–0942, julianne@jnlfc.org Main Phone: (612) 522-0942
Main Fax: (612) 522–6743
Grantee Website
Project Website
Mission and Goals
To empower families who have a member with a developmental disability to become more independent, productive, self-determined, integrated and included in the community.
Accomplishments
Major accomplishments include increased on-site programming. The Center has strong relationships and on-site referral with Vocational Rehabilitation Services, Outreach Services of Minnesota, Hennepin County, and the Brain Injury Association of Minnesota. We have increased our community education by including classes on positive behavior interventions and adding classes on county services. As a result of these activities, employment has increased for family members as well as access to needed services.
Since 2006, the Church has worked with the Minneapolis Area Synod of the Evangelical Lutheran Church in America and partner churches to create a larger project called the Jordan New Life Hub. The Hub has been incorporated in the State of Minnesota as a nonprofit and awaits its tax-exempt designation from the IRS. The Center will partner with the Hub, continue to provide information and referral services, and help individuals with disabilities and their families to navigate service delivery systems and secure necessary services.
Positive Impact
The mother of twins with Down Syndrome came to the Center with an addiction problem and no ability to care for her children financially or emotionally. Staff helped her identify a treatment program which she entered while her mother cared for the twins. Since graduating from treatment, she obtained a very good job paying $15/hr, has daycare for the children, and moved to a better, safer area where she is able to furnish her home with money she earned at her job. She is still working on getting waivered services through the county, but has progressed very well over the last year. She continues to patronize the Center for occasional needs as well as help accessing county services.
Missouri
Curators, University of Missouri
Visions with Hope 360° Center
5100 Rockhill Road
Kansas City, MO 64110
Contact: Derrick Willis at (816) 235–6438, willisdk@umkc.edu
Main Phone: (816) 235–1758
Main Fax: (816) 235–1762
Grantee Website
Project Website
Mission and Goals
The goal of Visions with Hope is to provide support services to Latino families that have children with disabilities. The program will provide information about disabilities, case management services and in-depth family planning.
Accomplishments
- The partnership with the Kansas City Regional Center (KCRC) continues to grow. KCRC is a regional office of the Missouri Department of Mental Health. Supervisors from KCRC and staff from Visions with Hope have had several meetings to discuss the work of both agencies. As a result of these meetings KCRC staff made an executive decision to assign specific case managers to work with the families from Visions with Hope.
- The involvement of fathers continues to grow. During this reporting period 12 fathers participated in two quarterly activities: Four fathers attended a 2-day workshop offered by National Center for Fatherhood. A total of six fathers participated of a “lunch and learn for fathers.” The fathers discussed the challenges of being a father of a child with a disability. The fathers feel more comfortable discussing issues related to the disabilities of their children among themselves. The Visions case manager, who is a father of a child with a disability, hosted both meetings. The fathers will continue to meet quarterly.
- Visions with Hope and Institute for Human Development staff have been studying sustainability options. Visions with Hope staff met with the Jackson County Board of Services several months ago to discuss some sustainability ideas with their staff. As a result of the meeting Visions with Hope staff responded to a request for proposals that was developed by the Jackson County Board of Services. The Jackson County Board of Services’ agreed to support the request for proposal that will focus on supporting the independent living of youth and adults with developmental and physical disabilities. This project will include several activities to increase meaningful experiences for youth and offer opportunities for the personal and social development of the youth being served.
Positive Impact
The words of a mother who has a child with autism: “When I found out my child’s disability (autism), I did not know what to do. I thought that only I was going through this, but when I met others that have more than one child with disabilities, I realized that what I had was nothing, that I could come ahead. Besides, I can help others. For me, that was a big help.”
New Hampshire
Andrea Gilbert
ACCESS Associates in Career and Community Employment Support Services, Inc.
Under One Roof Project
The River Center
46 Concord Street
Peterborough, NH 03458
Contact: Andrea Gilbert, at (603) 924–2159,
andrea@underoneroofproject.org
Main Fax: (603) 371–9059
Project Website or The River Center's Website
Mission and Goals
The Under One Roof (UOR) Project helps people of all ages and abilities enjoy recreational activities and employment in the rural towns in which they live.
Project goals are:
1. Help community members value the strengths and abilities of all of us.
2. Connect people who experience disability and their families to local opportunities for family support, recreation, and employment.
3. Use The River Center: A Place for Community Connections and Resources as a model of a community organization that includes people of all ages and abilities.
Accomplishments
The River Center is now a beautiful and accessible renovated old house in the downtown area of the biggest of the 14 towns, Peterborough. UOR has created a recreation mentoring program for high school students with a web site that allows students to find each other to have fun www.recreationallies.org. UOR has helped high school students and adults find paid jobs that are interesting to them, such as working with other high school students at a large camp ground and having a booth at a farmer’s market to sell homemade products. Since there is no public transportation in this area of rural New Hampshire, UOR is planning the Contoocook Valley Transportation Cooperative. We are helping to create community transportation for everyone. We started a chapter of People First NH, a self-advocacy program for young adults that meets monthly at The River Center. They are having a special two-part meeting on the topic of “relationships.”
Positive Impact
Will is an 18-year-old high school student who likes theater, bike riding, and being with friends. His mother or father have been responsible for helping Will find things to do and people to do them with. Now, with the new Recreation Allies program at Will’s high school, Will can go on the Web and either find interesting things that other students are doing and tell them that he wants to join them, or write something that he wants to do and ask for Allies to join him. His parents report being “liberated” from Will’s social life.
New Mexico
University of New Mexico Center for Development and Disability
Project Pueblo Connections
2300 Menaul, NE
Albuquerque, New Mexico 87107
Contact: Tanya Baker-McCue, Project Manager, at (505) 272–5641, tbaker-mccue@salud.unm.edu
Contact: Rachael Sanchez, Project Coordinator, at (505) 553-5704, rasanchez@salud.unm.edu
Main Phone: (505) 272–3000
Main Fax: (505) 272–5883
Grantee Website
Project Website
Mission and Goals
Develop Family Support Centers in four of the pueblos in Sandoval County, NM. Family support centers assist individuals with developmental disabilities and their families to access services and supports.
Accomplishments
1. The Project Coordinator recently represented Pueblo Connections and Native American families at the American Academy of Pediatrics (AAP) Community meeting, held in Chicago. The Project Coordinator was able to raise AAP’s awareness of issues facing families who have children with disabilities, as well as issues facing Native American families.
2. Project Pueblo Connections recently hosted a Family Leadership Institute. The 1-day Institute was the first in a three part series focused on teaching families and emerging leaders skills to become stronger influences in their communities and in the state.
Positive Impact
Through the Pueblo Connections Family Support grant, one family was able to purchase traditional clothing for their son so that he could take part in Pueblo dances and ceremonies. The young man has had to borrow the traditional clothing in the past due to the family’s limited finances. The young man now has greater self-esteem and sense of belonging to the community.
North Carolina
Family Support Network of North Carolina, University of North Carolina at Chapel Hill
Strengthening Families with Children Who Have Developmental
Disabilities: One Stop for Family Support
CB #7340
Chapel Hill, NC 27599
Contact: Irene Zipper, Principal Investigator/Project Director, at (919) 966–6395, izipper@unc.edu
Main Phone: (919) 966–2841
Main Fax: (919) 966–2916
Project Website
Mission and Goals
The mission of the Strengthening Families OneStop Project is to support the development of a culturally responsive, integrated community-based system of information and referral, service delivery, and follow-up to support families with children who have developmental disabilities.
The goals of the project are to strengthen linkages among State and local level organizations to benefit families with children with developmental disabilities; to establish a model of service coordination that involves parents as service coordinators for other families; to pilot an information and referral system to serve as a single point of entry for families; and to facilitate statewide replication of the model.
Accomplishments
The OneStop Project is especially proud of the following:
1. Effective State and local efforts to integrate and coordinate services and supports for families with children who have developmental disabilities.
2. The development of strong local community connections to serve families.
3. The establishment of State and Local Collaboration Teams to identify unserved and underserved families; define challenges and facilitators in supporting and preserving families; identify gaps and inconsistencies in policies, services and resources; and generate solutions to address these challenges, while working toward sustainability.
4. The collaboration with the Aging & Disability Resource Center to link diverse databases to establish a statewide, centralized, web-based information and referral data repository to provide statewide resources for families with children who have developmental disabilities.
Positive Impact
A family with two children with developmental disabilities was having difficulties understanding the tests and procedures used to develop their children’s IEPs. The OneStop Project was able to pay the registration fee for the mother to attend a Wrightslaw conference. Information gleaned at the conference gave the mother a better understanding of the implications of her children’s psychological and educational test results. As a result, she was better prepared for the children’s fall IEPs and for continuing negotiations with the school district. The mother has since sought independent tutoring for one of the children. The Project nominated this family to receive corporate sponsorship for financial assistance when the mother had to take medical leave from her job due to her own health needs and those of her children.
Oklahoma
Center for Learning and Leadership University Center for Excellence in
Developmental Disabilities University of Oklahoma Health Sciences Center
Oklahoma's Family Support 360° Project
P.O. Box 26901, ROB 342
Oklahoma City, OK 73190
Contact: Tara Lozano at (405) 271–4511, ext. 41016,
tara-lozano@ouhsc.edu
Main Phone: (405) 271–4500
Main Fax: (405) 271–1459
Mission and Goals
Goal: Establish a 360° family resource center within a primary healthcare clinic that will serve at least 50 families per year whose children have developmental disabilities and are eligible for Medicaid.
Our purpose is to provide a family-centered resource center to help families meet the unique challenges of raising children with developmental disabilities and to increase providers’ knowledge about family support practices, community resources, and a medical home approach to healthcare services.
Accomplishments
- Provided Christmas gifts to 21 families and Christmas dinner and groceries for 13 of those families through a local church and individual toy donations.
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Increased families’ knowledge of community and healthcare services available to them.
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Provided training to 44 pediatric residents who work with children with disabilities.
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Increased families’ knowledge and participation in planning services for their child in the public schools and in healthcare services.
Positive Impact
One of the families lost their belongings when rainstorms flooded their apartment for a second time. The 3607deg; Center provided resources such as food for the family, diapers, and clothing for the children. Since their child was hospitalized, the Family Support Coordinator worked with the apartment complex to ensure the family was moved to an upper-level apartment. This should prevent problems related to flooding.
Oregon
Human Services Research Institute
Juntos Podemos (Together We Can): A One-Stop Family Support 360 Center
2475 Lancaster Drive, NE, B–9
Salem, OR 97305
Contact: Morgan Garcia at (503) 566–7727,
mgarcia@hsri.org
Contact: Kerri Melda at (503) 924–3783, melda@hsri.org
Contact: John Agosta at (503) 924–3783,
agosta@hsri.org
Main Fax: (503) 566–7726
Project Website
Mission and Goals
Staff at Juntos Podemos offers families of children with
developmental disabilities a place where they will be welcomed and heard, and
linked to the services they need whenever possible. The Center also offers
families opportunity to offer mutual support and partner with community
organizations and businesses to support families. While the Center focuses on
Latino families, all families are welcome.
Accomplishments
We have excited families and the community about the project.
Our last family get-together was well attended, with community businesses
pitching in. Families are doing more together, helping each other out, and
volunteering to help the Center. Meanwhile, State and county agencies are taking
notice and want to participate more.
Positive Impact
It has helped more than one in a similar way. For the first time
families feel that they have a place of their own where they are welcomed and
heard, can get some of the support they need, and get information and guidance
about other agencies that can help them too.
Rhode Island
Paul V. Sherlock Center on Disability at RI College
Family Support 360 Transition from School to Adult Life/360 Local Supportive Parenting Project
600 Mt. Pleasant Avenue
Providence, RI 02908
Contact: John B. Susa, Ph.D. at (401) 444–5540,
john_susa@brown.edu
Main Phone: (401) 456–8072
Main Fax: (401) 456–8150
Grantee Website
Project Website
Mission and Goals
This project has two parts. One part helps families of youth with the most challenging disabilities plan a meaningful adult life. The second part helps parents with learning challenges become better parents and self-advocates.
Accomplishments
The project has helped form a parent-to-parent support group. This group provides nutrition and menu-planning training, as well as peer support for parents. The project has helped families become aware of all the options for their youth with disabilities as they move toward adult life. Families have been able to dream bigger and make more informed choices with and for their family members.
Positive Impact
When we met G. and her family, they were living in poor housing. They could not afford utilities. Our bilingual staff person helped the family move to a nice, affordable apartment. She worked with the mother, who was unhealthy, to apply for SSI and widows benefits. This increased the family income and provided the mother with medical insurance. G. graduated from high school, but was attending a program that could not communicate with the family in Spanish. We helped the family change G.’s supports to a day program with bilingual staff.
South Dakota
South Dakota Department of Human Services
Family Support 360 People Leading Accessible Networks of Support (PLANS)
Hillsview Properties Plaza
3800 East Highway 34
Pierre, SD 57501
Contact: Deb Petersen at (605) 773–3438,
Deb.Petersen@state.sd.us
Main Phone: (605) 773-3438
Main Fax: (605) 773–7562
Grantee Website
Project Website
Mission and Goals
The PLANS Family Support 360 mission is to empower people to achieve their dreams through choice of services and supports. The goals of the project are to support each person to make decisions, to support each person’s choices to live and work in their community, and to assist each person to explore available community resources and services.
Accomplishments
- Project Coordinators have developed plans of care with 177 adults with developmental disabilities and their families.
- Four Programs have been started, with a fifth expected to begin in August 2008, making services available statewide.
- Project staff developed numerous collaborative relationships on a statewide and local basis to obtain necessary services and supports for the families. One recent example is the Christian nonprofit group Re-Member. Re-Member will install ramps in homes and assist with home remodeling projects for those in need.
Positive Impact
A young Native-American woman asked for assistance to obtain her high school diploma. She had dropped out of high school several times and was now caring for her young daughter. The Coordinator advocated with the school to accept three previously completed courses for credit towards the young woman’s diploma and was successful. The young woman recently received her diploma and is now working with the Coordinator to research possible law enforcement programs.
This young woman had previously been on probation but now wants to work in the law enforcement field and help people in similar situations.
Utah
Utah State University/Center for Persons with Disabilities
Disability Support Center for Families
1574 West 1700 South, Suite 1A
Salt Lake City, UT 84104
Contact: Amy Notwell, Program Coordinator, at (801) 973–0206,
amy@cpd2.usu.edu
Main Phone: (801) 973–0129
Main Fax: (801) 973–6964
Project Website
Mission and Goals
The mission of the Disability Support Center for Families is to improve the quality of life for children, youth, and adults with developmental disabilities and their families in an economically disadvantaged and ethnically diverse area of Salt Lake City.
Accomplishments
The Disability Support Center is very proud of our Hispanic Family Support Parent Group, Proyecto Prevencion. After many years of staff assistance, the parent group has now become totally self-sufficient. They recently had several fund raisers, which now allow for them to pay for their own child care providers, refreshments, and activities. They are 20 families strong and have developed a tight bond with one another. Even if the center is unable to sustain itself, this family group will live on.
Positive Impact
Just recently, the Disability Support Center for Families assisted a gentleman in his fifties who was diagnosed with Alzheimer’s. He had been in the hospital for 2 months waiting for placement with either an Immediate Care Facility/MR or a nursing home. The major problem he faced was that nursing homes were not willing to serve an individual with Down syndrome and the ICF/MR was not willing to take an individual with Alzheimers. Not unlike baby boomers who face long-term care in the future, people with disabilities are also faced with this challenge. Facilities are neither willing nor able to manage individuals that have duel needs such as aging and developmental disabilities. After several tries, and much negotiation, John is now receiving supports that he needs.
Vermont
Vermont Agency of Human Services
Green Mountain Family Support 360 Implementation
103 South Main Street
Waterbury, VT 05671
Contact: Tracy Dorman at (802) 447–6985 or (800) 639-7170, tdorman@vtpic.com
Main Phone: (802) 241-3529
Main Fax: (802) 241-4461
Grantee Website
Mission and Goals
Parents with disabilities in Vermont will receive adequate supports to raise their children successfully at home. People with disabilities and their families will be part of the transformation of the Agency of Human Services. Peer Navigators will connect families to communication support for court situations, service coordination, and formal and informal supports in their communities.
Accomplishments
- Of the 541 families we have served over 4 years, only 11 have lost their parental rights (1.7%).
- Language about supports to parents with disabilities was added to two child welfare bills that passed the legislature this year.
- Training has been completed for 10 out of 12 DCF Regions on Supporting Parents with Disabilities; 11 new Communication Support Specialists have been trained; 8 new Parenting Skills Assessors have been trained.
Positive Impact
A single mother with disabilities who had never had a stable home her entire life, has now moved into a 3-bedroom apartment. This year, she gave birth to a son, who has been diagnosed with Cystic Fibrosis. She is learning to care for his special health needs, and she is still attempting to be reunified with her other two children.
Wisconsin
State of Wisconsin, Department of Health and Family Services
One-Stop Family Support Project
1 West Wilson Street
Madison, WI 53707-7851
Contact: Julie Bryda at (414) 763–0851, brydaja@dhfs.state.wi.us
Main Fax: (608) 265–3441
Project
Website(1)
Project
Website(2)
Mission and Goals
The Family Support 360 Project is located at the Harambee Center on the Southside of Madison, WI, where many families experience challenges with long-term and family supports. The focus of the center is to:
- Develop and implement a One Stop Family Support Center that will connect families with comprehensive, community-based, family-directed information, supports and services to children with disabilities and their families.
- Make resources and training available so that providers and families are knowledgeable and effective navigators of the Children’s Long-Term Support System (CLTS).
- Increase the coordination between existing State and county-funded information and assistance activities.
- Implement measures of quality, as well as the process to review quality of services and supports, in partnership with families.
Accomplishments
Families visit the center on a regular basis to seek information and assistance. In addition to individual assistance, Family Support 360 offers two learning opportunities for families to come together. Our monthly Learning Circles provide an excellent opportunity to support parents and providers in the community who are interested in learning more about meeting the needs of children with disabilities in their schools and community. The bilingual Parents in Partnership (PIP), intensive leadership training began in March. Fourteen families registered for five, one and a half day sessions. PIP is a collaboration with the Wisconsin Statewide Parent Educator Initiative (DPI), FACETS (PTI) and the Madison School District and FS 360 Participating families have an opportunity to learn and practice leadership skills on a project of their choosing. This leadership model includes a parent and provider as co-facilitators of the training. All sessions are interpreted and have child care available.
Positive Impact
In November 2006, Family Support 360 met a family with a 12-year-old son with Down Syndrome. Originally from Mexico, dad and son are U.S. citizens and mom is a permanent legal resident. Despite eligibility, the family has struggled to access the developmental disability, medical, and economic assistance systems due to language and cultural barriers. Family Support 360 has helped the family navigate the many systems they are involved with.
The FS 360 service coordinator helped the family apply for SSI for their son, connect with community-based agencies that help provide emergency rent assistance and FoodShare, and work with the school district to have the student move from a partial-day to a full-day schedule. The FS 360 worker is presently working with the family to find a Spanish-speaking person with documentation whom the whole family is comfortable having in the home so that the son can receive help with personal care. The mom also enrolled in Parents in Partnership, a five-weekend parent training program sponsored by Family Support 360 to learn to be a better self-advocate.
Through these actions, the son is now attending the full school day and has a complete and satisfactory behavior intervention program, and the family meets monthly with the school team to facilitate better communication.
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