Developmental Disability Resource Links
The following is a list of resource links**, available categorically, for your organization in order to assist the families of those with developmental disabilities. Each of the organizations is involved in the disability community and offers a variety of resources and publications.
Categorical Listing
ADD Partners
Administration on Developmental Disabilities Partners
www.acf.hhs.gov/programs/add/addprogram.html
Association of University Centers on Disabilities
A network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.
www.aucd.org
Advocacy Organizations
Bazelon Center for Mental Health Law
The Bazelon Center for Mental Health Law is a national legal advocate for people with mental disabilities. Through precedent-setting litigation and in the public policy arena, the Bazelon Center works to advance and preserve the rights of people with mental illnesses and developmental disabilities.
www.bazelon.org
Patient Advocate Foundation
Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases.
www.patientadvocate.org
Aging and Disability
Aging and Disability Resource Centers, Technical Assistance Exchange
The Aging and Disability Resource Center (ADRC) grant program is intended to stimulate the development of State systems that integrate information, referral, and benefits and options counseling services. The program also facilitates access to publicly and privately financed long-term care services and benefits. The ADRC Technical Assistance Exchange provides a forum for State-to-State information exchange on policy and program infrastructure development, as well as direct technical assistance to and between the States.
www.adrc-tae.org
Aging and Disability Resource Centers, Technical Assistance Exchange Grantees By State
There are ADRCs throughout the United States. The below link provides links to the full grantee profile as well as documents provided by those states. The grantee profiles give a brief overview of the ADRC project background, program design, and evaluation design.
http://www.adrc-tae.org/tiki-index.php?page=GranteeProfilesPublic
Assistive and Other Technologies
Closing the Gap
Closing The Gap, Inc. is a company that focuses on computer technology for people with special needs.
www.closingthegap.com
Family Center on Technology and Disability
The Family Center on Technology and Disability (FCTD) is a resource designed to support organizations and programs that work with families of children and youth with disabilities. FCTD offers a range of information and services on the subject of assistive technologies, including a monthly newsletter, online conferences, and assistive technology resources in English and Spanish.
www.fctd.info
NH ParTech
NH ParTech represents 100 human service nonprofit organizations in New Hampshire committed to developing technology to open access, eliminate duplication, and coordinate services for families and individuals. Its main goal is to streamline the process of delivering services to people in need.
www.nhpartech.org
Autism
AHEADD: Achieving in Higher Education with Autism/Developmental Disabilities
While college accommodation plans provide excellent in-class assistance, students with Learning Disabilities, ASDs, AS,
NVLD, and ADD require far more comprehensive, individualized, and ongoing support to address difficulties in the areas of organization, social skills, and communication. AHEADD's mission is to establish and maintain best practices which fill this void in a manner that respects students as adults, complements the traditional college accommodations plan, and maximizes use of existing campus resources.
www.aheadd.org
Autism Internet Modules
This Ohio Center for Autism and Low Incidence site aims to host 60 modules that contain valuable information on Autism Spectrum Disorders (ASD), such as characteristics, diagnosis, intervention and support systems, transition and employment. Each module is developed by ASD experts from across the country. Currently, there are four live modules: Home Base, Structured Work Systems and Activity Organization, Transitioning Between Activities, and Visual Supports. The site requires registration, but is free of charge.
www.autisminternetmodules.org
Interactive Autism Network
The Interactive Autism Network(IAN), is an innovative online project designed to accelerate the pace of autism research
by linking researchers and families. Anyone impacted by an Autism Spectrum Disorder (ASD) can become part of IAN's online
community to stay informed about autism research, provide feedback, and make their voices heard.In addition, families of
children with an ASD can share information in a secure online setting and become part of the
nation's largest online research effort. As a result, researchers will obtain valuable data, explain findings, and
collaborate with families and one another. This dynamic exchange could lead to new discoveries about causes, diagnosis,
treatments, and a possible cure for this puzzling group of disorders.
http://www.ianproject.org
Caregiving
National Family Caregivers Association
The National Family Caregivers Association educates, supports, empowers and speaks up for Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.
www.thefamilycaregiver.org
Child and Adolescent
Center for Children and Families
The Center for Children and Families, based at Georgetown University's Health Policy Institute, is an independent, nonpartisan policy and research center whose mission is to expand and improve health coverage for America's children and families.
www.ccf.georgetown.edu
Data Resource Center for Child & Adolescent Health
The Data Resource Center for Child & Adolescent Health website provides access to survey data from the National Survey of Children’s Health and the National Survey of
Children with Special Health Care Needs (CSHCN) and allows users to:
- Search and compare national, state or regional prevalence estimates
- Look for national, state or regional results on key indicators and MCHB outcomes
- Compare findings for CSHCN from different age, race, income, or health status groups
- Compare results for your state, the nation, or subgroups of children
- View state and regional profiles on key measures
- Explore survey content relevant to Healthy People 2010
http://childhealthdata.org
Early Head Start National Resource Center in Spanish
The Early Head Start National Resource Center (EHS NRC) is a storehouse of early childhood expertise that promotes the building of new knowledge and the sharing of information. EHS NRC has translated their Web site into Spanish, offering a wealth of information and resources to the Spanish-speaking community.
http://www.ehsnrc.org/spanish
Educational Policy Reform Research Institute
Educational Policy Reform Research Institute is a federally funded program that is increasing knowledge and understanding about how students with disabilities can be fully included in educational accountability measures.
www.eprri.org
Families and Advocates Partnership for Education
The Families and Advocates Partnership for Education project is a partnership that aims to improve the educational outcomes for children with disabilities. It links families, advocates, and self-advocates to information about the Individuals With Disabilities Education Act (IDEA). The project is designed to address the information needs of the 6 million families throughout the Nation whose children with disabilities receive special education services.
www.fape.org
Family Center on Technology and Disability
The Family Center on Technology and Disability (FCTD) is a resource designed to support organizations and programs that work with families of children and youth with disabilities. FCTD offers a range of information and services on the subject of assistive technologies, including a monthly newsletter, online conferences, and assistive technology resources in English and Spanish.
www.fctd.info
Family Voices
Family Voices, a national grassroots network of families and friends, advocates for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals. Information in Spanish is available.
www.familyvoices.org
IncludingAllKids.Org
This Web site was created to assist community youth organizations in actively engaging young people of all abilities.
www.includingallkids.easterseals.com
Kids Included Together
KIT stands for Kids Included Together, a registered 501(c)(3) non-profit organization that was founded in San Diego,
California in 1997. The mission of Kids Included Together is to support recreational, child development, and youth
development programs that include children with and without disabilities. KIT's goals are to enrich the lives of all
who participate and to increase understanding and acceptance of disabilities as a natural part of life.
www.kitonline.org
Loving Your Disabled Child
Loving Your Disabled Child is a community parent and family resource center designed to provide parents and families of children with disabilities emotional, educational, and spiritual support.
http://www.lydc.org
National Collaborative on Workforce and Disability
The National Collaborative on Workforce and Disability for Youth assists state and local workforce development systems to better serve youth with disabilities. It strives to ensure that youth with disabilities are provided full access to high quality services in integrated settings in order to maximize their opportunities for employment and independent living.
www.ncwd-youth.info
National Dissemination Center for Children With Disabilities
National Dissemination Center for Children With Disabilities serves as a central source of information on: disabilities in infants, toddlers, children, and youth; IDEA, which is the law authorizing special education; No Child Left Behind (as it relates to children with disabilities); and research-based information on effective educational practices.
www.nichcy.org
Centro Nacional de Diseminación de Información para Niños con Discapacidades
www.nichcy.org/spanish
National Federation of Families for Children's Mental Health
The NFFCMH is a national family-run organization dedicated exclusively to helping children with mental health needs and their families achieve a better quality of life. The Federation provides leadership to develop and sustain a nationwide network of family-run organizations, focuses the passion and cultural diversity of its membership to be a force for changing how systems respond to children with mental health needs and their families, and helps policy-makers, agencies, and providers become more effective in delivering services and supports that foster healthy emotional development for all children.
www.ffcmh.org
PACER Center: Publications Catalog
The PACER Center's Publications Catalog provides numerous resources in a broad range of areas, including Assistive Technology, Parent Center and Parent Trainer Resources, Special Education Rights, and more. Although some publications are available for purchase in hard copy, most are free to download. Translated materials are also available in Spanish, Somali, and Hmong and SE Asian.
www.pacer.org/publications
Special Child
Special Child is an online publication dedicated to parents of children with special needs.
www.specialchild.com
Zigawhat
Zigawhat is a Web site for learning, connecting, growing, coping, and having fun for young people with disabilities and their peers. Zigawhat is maintained by the National Dissemination Center for Children with Disabilities.
www.nichcy.org/kids/index
Collaboration
SharedWork.org
The SharedWork.org website is designed to support and facilitate the shared work that occurs among individuals, organizations and agencies at the local, district, state, and national levels. Each community of practice, state, or practice group has the following sections: What’s New, Repository, and Discussion.
www.sharedwork.org
Community Development
Positive Deviance Initiative
Positive Deviance (PD) is a development approach that is based on the premise that solutions to community problems already exist within the community. The positive deviance approach thus differs from traditional "needs based" approaches in that it does not focus on identification of needs and the external inputs necessary to meet those needs. It seeks to identify and optimize existing resources within the community to solve problems. The objectives of PD Initiative are to document and share information on current global PD projects, to explore new PD applications, and to expand the cadre of PD practitioners and trainers.
www.positivedeviance.org
Cultural Disability Organizations
American Indian Disability Technical Assistance Center
The American Indian Disability Technical Assistance Center (AIDTAC) strives to support American Indians and Alaska Natives in their efforts to improve employment opportunities and vocational rehabilitation outcomes wherever they live in the United States.
http://aidtac.ruralinstitute.umt.edu
Migrant Head Start Disabilities Services Quality Improvement Center
The Migrant Head Start Disabilities Services Quality Improvement Center is committed to providing Migrant and Seasonal Head Start programs with current and useful information and resources to persons with disabilities.
http://mhsqic.org/DSQIC/homepage.htm
Migrant Head Start Disabilities Services Quality Improvement Center Resource Links
The Migrant Head Start Disabilities Services Quality Improvement Center has provided a variety of links relevant for FS 360 one-stop centers. Links include:
Down Syndrome
National Down Syndrome Congress
The mission of the National Down Syndrome Congress is to provide information, advocacy, and support concerning all aspects of life for individuals with Down syndrome.
http://www.ndsccenter.org
Family Support
National Center for Family Support
The National Center for Family Support (NCFS) was established to provide training and technical assistance on family support to 56 project sites through an ADD contract. The NCFS Web site offers a variety of resources and publications about best practices and policies regarding family support.
www.familysupport-hsri.org
NCcareLINK
This website provides up-to-date information about programs and services across North Carolina for families, seniors, youths and everyone in-between. It is a collaborative effort of the North Carolina Department of Health and Human Services and many other government and non-profit information and referral stakeholders across North Carolina.
www.nccarelink.gov
One-Stop Virtual Center, Developed by the Office of Community Services, Department of Labor and Industrial Relations, Hawaii
This center brings together names and resources of different organizations within the community for families. Available at this site are two of the most commonly used U.S. Department of Health and Human Services forms: financial benefits and Medicaid/Medicare.
www.realchoices.org
Parent to Parent-USA
Parent to Parent-USA (P2P-USA) is a national non-profit organization committed to assuring access and quality in Parent to Parent support across the country. This site highlights statewide organizations that have parent to parent support as a core program and are committed to implementing evidence-based practices. Parent to Parent programs provide emotional and informational support to families of children who have special needs most notably by matching parents seeking support with an experienced, trained 'Support Parent'.
www.p2pusa.org/
Foreign Language Resource Links
Centro Nacional de Diseminación de Información para Niños con Discapacidades
National Dissemination Center for Children With Disabilities serves as a central source of information on: disabilities in infants, toddlers, children, and youth; IDEA, which is the law authorizing special education; No Child Left Behind (as it relates to children with disabilities); and research-based information on effective educational practices.
www.nichcy.org/spanish
Guía Informativa Familiar sobre la Tecnología Assistencial
El Centro Familiar produce y distribuye una variedad de recursos informativos en el tema de la tecnología asistencial. La Meta Del Centro es fortalecer la habilidad de organizaciones a través de toda la nación para que provean a las familias de niños con discapacidades información reciente, precisa y materiales útiles.
www.fctd.info/resources/fig/spanish
National Early Childhood Technical Assistance Center/
Centro Nacional de Asistencia Técnica para la Niñez Temprana
El Centro Nacional de Asistencia Técnica para la Niñez Temprana (in inglés, National Early Childhood Technical Assistance Center) apoya la implementación de las provisiones de la niñez temprana del Acta para la Educación de Individuos con Discapacidades (IDEA, "Individuals with Disabilities Education Act"). Nuestra misión es de fortalecer los sistemas de servicio para asegurar que los niños con discapacidades (desde el nacimiento hasta los cinco años de edad) y sus familias reciban y se beneficien de apoyos y servicios que son de alta calidad, apropiados culturalmente y centrados en la familia.
www.nectac.org/espanol/bienvenidos.asp
Social Securtiy Administration/Seguro Social en Español
This link will take you to the Spanish-language version of the Social Security Administration's Web Site. Information on benefits eligibility and programs is available in Spanish.
www.ssa.gov/espanol/index.htm
General Disability
American Association of People with Disabilities
The American Association of People with Disabilities (AAPD) is the largest national nonprofit cross-disability member organization in the United States, dedicated to ensuring economic self-sufficiency and political empowerment for the more than 56 million Americans with disabilities. AAPD works in coalition with other disability organizations for the full implementation and enforcement of disability nondiscrimination laws, particularly the Americans with Disabilities Act (ADA) of 1990 and the Rehabilitation Act of 1973. The American Indian Disability Technical Assistance Center (AIDTAC) strives to support American Indians and Alaska Natives in their efforts to improve employment opportunities and vocational rehabilitation outcomes wherever they live in the United States.
http://www.aapd-dc.org/
Beach Center on Disability
Together with families and individuals affected by disability, the Beach Center on Disability strives to make a significant and sustainable difference in the quality of life of families and individuals.
http://www.beachcenter.org
Consortium for Citizens with Disabilities
The Consortium for Citizens With Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration, and inclusion of children and adults with disabilities in all aspects of society.
www.c-c-d.org
Disability Funders Network
Disability Funders Network (DFN) is a national membership and philanthropic advocacy organization that seeks equality and rights for disabled individuals and communities by bridging philanthropic resources, disability and community. DFN envisions an empowered and functioning democracy with full equality under the law, equal access to services, unconditional respect for difference and the meaningful participation of all communities at tables where decisions are made.
www.disabilityfunders.org
Family Village
Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.
http://www.familyvillage.wisc.edu/index.html
Inclusion Research Institute
Inclusion Research Institute (IRI) is a 501(c)(3) nonprofit organization incorporated in the District of Columbia. The primary mission of IRI is to research, develop, and disseminate innovations that enable persons of all ages, including individuals with disabilities or other disadvantages, to be independent, productive and included in schools, communities, and places of employment.
http://www.inclusionresearch.org
Medline Plus Developmental Disabilities Section, National Institutes of Health and the National Library of Medicine
Medline Plus Developmental Disabilities Section contains a variety of resources and publications on developmental disabilities—from clinical trials and screenings to law and policy.
www.nlm.nih.gov/medlineplus/developmentaldisabilities.html
Museum of disABILITY
This website is presented by People Inc., a non-profit human service agency serving people with special needs, seniors and their families in Western New York. The site contains virtual exhibits documenting various aspects of the history of individuals with disabilities, as well as an extensive bibliography. The museum is dedicated to advancing the understanding, acceptance, and independence of people with disabilities.
www.museumofdisability.org
National Association of State Directors of Developmental Disabilities Services
The National Association of State Directors of Developmental Disabilities Services (NASDDDS) is a nonprofit organization established in 1964 to improve and expand public services to people with mental retardation and other developmental disabilities.
http://www.nasddds.org/index.shtml
National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
The National Center on Birth Defects and Developmental Disabilities promotes the health of babies, children, and adults, and enhances the potential for full, productive living.
www.cdc.gov/ncbddd
National Clearinghouse for Long-Term Care Information
The National Clearinghouse for Long-Term Care Information is a Web site developed by the U.S. Department of Health and
Human Services to provide information and resources to help families plan for future long-term care needs. The clearinghouse is primarily intended as an information and planning resource for individuals
who don't yet require long-term care. It includes information on services and financing options that can be helpful
to all individuals.
http://www.longtermcare.gov
National Disability Rights Network
The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities. Collectively, the P&A/CAP network is the largest provider of legally based advocacy services to people with disabilities in the United States.
www.napas.org
National Organization on Disability
The mission of the National Organization on Disability (NOD) is to expand the participation and contribution of America's 54 million men, women and children with disabilities in all aspects of life.
http://www.nod.org
Partners in Policymaking
Partners in Policymaking was created in Minnesota by the Governor's Council on Developmental Disabilities in 1987. Partners in Policymaking is an innovative, competency based leadership training program for adults with disabilities and parents of young children with developmental disabilities. The purpose of the program is twofold: to teach best practices in disability, and to teach the competencies of influencing public officials.
www.partnersinpolicymaking.com
Quality Mall
Quality Mall offers free information on person-centered supports for people with developmental disabilities. Each of the Quality Mall "stores" has departments you can look through to learn about positive practices that help people with developmental disabilities live, work, and participate in their communities and improve the quality of their supports.
http://www.qualitymall.org
Service Tapestry
Service Tapestry is an online transition resources database. It is a searchable database with hundreds of different disability-related organizations, post-secondary education opportunities, as well as many other things.
http://www.ccids.umaine.edu/resources/servtap
The Arc
The Arc of the United States works to include all children and adults with cognitive, intellectual, and developmental disabilities in every community. The Arc provides a State-by-State guide to benefits, supports, and services for families raising children with mental retardation and related developmental disabilities.
www.thearc.org and http://www.thearc.org/publications
Through the Looking Glass
Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent, or grandparent has a disability or medical issue. TLG's mission is to create, demonstrate and encourage nonpathological and empowering resources and model early intervention services for families with disability issues in a parent or child.
http://lookingglass.org
World Institute on Disability
The World Institute on Disability is an internationally recognized public policy center organized by and for people with disabilities. It works to strengthen the disability movement through research, training, advocacy and public education to help people with disabilities throughout the world enjoy increased opportunities to live independently.
www.wid.org
Government Agency
Administration on Developmental Disabilities
www.acf.hhs.gov/programs/add
Americans with Disabilities Act
ADA.gov provides information and technical assistance on the Americans with Disabilities Act.
www.ada.gov
DisabilityInfo.gov
DisabilityInfo.gov is the federal government's one-stop Web site for people with disabilities, their families, employers, veterans and service members, workforce professionals and many others. A collaborative effort among twenty-two federal agencies, DisabilityInfo.gov connects people with disabilities to the information and resources they need to actively participate in the workforce and in their communities.
http://www.disabilityinfo.gov
Federal Transit Administration Office of Civil Rights
The Federal Transit Administration works to ensure nondiscriminatory transportation in support of its mission to enhance
the social and economic quality of life for all Americans. The FTA Office of Civil Rights is responsible for civil
rights compliance and monitoring to ensure non-discriminatory provision of transit services, including portions of the Americans
with Disabilities Act of 1990, which prohibits discrimination and ensures equal opportunity and access for persons with
disabilities.
www.fta.dot.gov/civil_rights.html
Federal Transit Administration's ADA Website
The Federal Transit Administration's Americans with Disabilities Act of 1990 (ADA) Website offers information on ADA technical assistance; FTA ADA compliance; FTA ADA programs;
ADA regulations, guidance, and procedures; and past ADA events.
www.fta.dot.gov/ada
Grants.gov
Grants.gov is a central storehouse for information on over 1,000 grant programs and access to approximately $400 billion in annual awards. By registering once on this site, your organization can apply for grants from the 26 federal grant-making agencies.
http://grants.gov
Medline Plus Developmental Disabilities Section, National Institutes of Health and the National Library of Medicine
Medline Plus Developmental Disabilities Section contains a variety of resources and publications on developmental disabilities—from clinical trials and screenings to law and policy.
www.nlm.nih.gov/medlineplus/developmentaldisabilities.html
National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention
The National Center on Birth Defects and Developmental Disabilities promotes the health of babies, children, and adults, and enhances the potential for full, productive living.
www.cdc.gov/ncbddd
National Clearinghouse for Long-Term Care Information
The National Clearinghouse for Long-Term Care Information is a Web site developed by the U.S. Department of Health and
Human Services to provide information and resources to help families plan for future long-term care needs. The clearinghouse is primarily intended as an information and planning resource for individuals
who don't yet require long-term care. It includes information on services and financing options that can be helpful
to all individuals.
http://www.longtermcare.gov
Office of Family Assistance
The Office of Family Assistance (OFA) is located in the United States Department of Health and Human Services, Administration for Children and Families and oversees the Temporary Assistance for Needy Families (TANF) Program.
TANF provides assistance and work opportunities to needy families by granting states the federal funds and wide flexibility to develop and implement their own welfare programs.
http://www.acf.hhs.gov/programs/ofa/
Office of Minority Health
The mission of the Office of Minority Health (OMH) is to improve and protect the health of racial and ethnic minority populations through the development of health policies and programs that will eliminate health disparities. OMH advises the Secretary and the Office of Public Health and Science on public health program activities affecting American Indians and Alaska Natives, Asian Americans, Blacks/African Americans, Hispanics/Latinos, Native Hawaiians, and other Pacific Islanders.
www.omhrc.gov
Social Security Online
Social Security Online allows users to find Social Security information, apply for benefits, estimate future benefits, locate a local field office, and more.
www.socialsecurity.gov
USDA Rural Development
United States Department of Agriculture (USDA) Rural Development is committed to helping improve the economy and quality of life in all of rural America. USDA Rural Development financial programs support such essential public facilities and services as water and sewer systems, housing, health clinics, emergency service facilities, and electric and telephone service. USDA Rural Development promotes economic development by supporting loans to businesses through banks and community-managed lending pools. USDA Rural Development offers technical assistance and information to help agricultural and other cooperatives get started and improve the effectiveness of their member services, and provides technical assistance to help communities undertake community empowerment programs. USDA Rural Development administers nearly $16 billion in program loans, loan guarantees, and grants through its programs.
www.rurdev.usda.gov
International Resource Links
Inclusion International
Inclusion International (II) is a global federation of family-based organizations advocating for the human rights of people with intellectual disabilities worldwide. II works with international agencies and regional bodies to promote inclusive approaches to policy, practice and investment strategies. The II Web site is available in English, French and Spanish.
www.inclusion-international.org
National Clearinghouse on Disability and Exchange (NCDE)
This clearinghouse is a comprehensive one-stop resource for people with disabilities, exchange and disability staff interested in study, work, intern, volunteer, research or teach abroad programs. NCDE is sponsored by the Bureau of Educational and Cultural Affairs of the United States Department of State and administered by Mobility International USA (MIUSA).
www.miusa.org/ncde
Medicaid, Medicare, SCHIP, and SSI
Benefit Eligibility Screening Tool
The Benefit Eligibility Screening Tool (BEST) is a tool that you can use to find out if you could be eligible for benefits from any of the programs Social Security administers. This tool will give you eligibility information based on answers you give to the questions on the following pages; however, BEST is not an application for benefits and:
- will not give you an estimate of benefit amounts.
- does not know, or ask for, your name or Social Security number.
- does not access your personal Social Security records.
https://secure.ssa.gov/apps7/best/benefits
Kaiser Commission on Medicaid and the Uninsured
Create customized children’s health fact sheets using the latest data from The Kaiser Commission on Medicaid and the Uninsured.
www.statehealthfacts.org/children.jsp
Medicaid and SCHIP
This category, from the Kaiser Foundation, provides information about the states health coverage programs for the low-income, including Medicaid and the State Children''s Health Insurance Program (SCHIP). Includes topics such as enrollment, eligibility requirements, managed care participation, spending and federal matching amounts, and enrollment practices.
www.statehealthfacts.org/comparecat.jsp?cat=4
Medicaid Reference Desk
This website contains information about Medicaid for people with cognitive disabilities, including a Medicaid
overview, eligibility information, and state-specific Medicaid summaries and contact information.
The Medicaid Reference Desk Website is funded through a Project of National Significance grant from The Administration
on Developmental Disabilities (ADD) to The Arc of the United States, and is sponsored by TheArcLink Incorporated.
www.thedesk.info
State Children's Health Insurance Program
The State Children's Health Insurance Program (SCHIP) is jointly financed by the Federal and State governments and administered by the States. Within broad Federal guidelines, each State determines the design of its program, eligibility groups, benefit packages, payment levels for coverage, and administrative and operating procedures. SCHIP provides a capped amount of funds to States on a matching basis.
http://www.cms.hhs.gov/home/schip.asp
State Income Eligibility Levels for SCHIP
Income Eligibility Levels for Children's Separate SCHIP Programs by Annual Incomes and as a Percent of Federal Poverty Level, 2006.
www.statehealthfacts.org/comparemaptable.jsp?ind=204&cat=4
Parents With Disabilities
Parents with Disabilities Online
Parents with Disabilities Online provides information, support and resources to parents with disabilities, including the Parent Empowerment Network, an e-mail community of parents with disabilities, people with disabilities who hope someday to become parents, and (where applicable) nondisabled partners of parents with disabilities. The Parent Empowerment Network is a means of connecting with other parents, through an electronic mail listserver, on a variety of issues.
http://disabledparents.net
Physical Activity
National Center for Physical Activity and Disability
The National Center for Physical Activity and Disability is operated by the University of Illinois at Chicago, and its main purpose is to promote physical activity in all people, mostly people with disabilities. Physical activity can be sports, working out, exercising, or any combination thereof.
http://www.ncpad.org
Research and Statistics
The Research and Training Center on Community Living
A major activity of the Research and Training Center on Community Living (RTC) is to analyze various data sets to learn about the status and characteristics of individuals with disabilities in the United States. Highlights of their work in this area include annual surveys of states to assess residential services, analysis of the National Health Interview Survey findings to learn about people with disabilities living in their own or family homes, and periodic specialized analysis of other data sets. Many common questions about who, how many and where can be found in the published reports posted on the RTC Web site. The RTC also conducts specialized analyses upon request.
http://rtc.umn.edu/statistics/
Rural
USDA Rural Development
United States Department of Agriculture (USDA) Rural Development is committed to helping improve the economy and quality
of life in all of rural America. USDA Rural Development financial programs support such essential public facilities and services as water and sewer systems, housing,
health clinics, emergency service facilities, and electric and telephone service. USDA Rural Development promotes economic development by
supporting loans to businesses through banks and community-managed lending pools. USDA Rural Development offers technical assistance and
information to help agricultural and other cooperatives get started and improve the effectiveness of their member
services, and provides technical assistance to help communities undertake community empowerment programs. USDA Rural Development administers nearly $16 billion in program loans, loan
guarantees, and grants through its programs.
www.rurdev.usda.gov
Self-Advocacy
Center for Self-Determination
The Center for Self-Determination is a collaboration of individuals and organizations committed to the principles of self-determination to help all persons create the lives they want, connect to and with their communities, and pursue long term relationships and economic futures.
www.self-determination.com
Partners in Policymaking
Partners in Policymaking was created in Minnesota by the Governor's Council on Developmental Disabilities in 1987. Partners in Policymaking is an innovative, competency based leadership training program for adults with disabilities and parents of young children with developmental disabilities. The purpose of the program is twofold: to teach best practices in disability, and to teach the competencies of influencing public officials.
www.partnersinpolicymaking.com
The Riot!
The Riot! is a national e-newsletter for self-advocates from the Self-Advocate Leadership Network at Human Services Research Institute. A self-advocate is somebody who has a disability and speaks up for themselves. Are you a self-advocate? If you are, then The Riot! is for YOU!
www.hsri.org/leaders/theriot
State-Specific
Screen Door
The Screen Door is Vermont's Agency of Human Services' Screening Tool. It was designed to help Vermonters find out about the services that might be available to help them.
www.screendoor.vermont.gov
Technical Assistance
ADA Training Resource Center
A one-stop for courses, events and tools on the Americans with Disabilities Act. Find a wealth of ADA training materials including audio conferences, case law updates, case studies, courses, handouts, statistics & quotes, tips, and solutions pages for targeted audiences.
www.adacourse.org
HCBS Clearinghouse for the Community Living Exchange Program
The Community Living Exchange Collaborative is a joint effort of the Independent Living Research Utilization and Rutgers Center for State Health Policy. The Exchange is funded by the Centers for Medicare and Medicaid Services. This site assists states and other entities in building systems that provide services and supports that reflect the needs and preferences of individuals of all ages with disabilities. This site is intended to facilitate sharing information, tools, and practical resources across the many states and local entities that are reexamining and redesigning how they provide supports.
www.hcbs.org
National Consortium for Health Systems Development (NCHSD)
The NCHSD is a technical assistance partnership providing flexible, state-tailored technical assistance to states developing comprehensive health and employment service systems for people with disabilities who want to work. Serving people with disabilities, providers, state agencies, research institutes, advocates and businesses, NCHSD is a project of Health & Disability Advocates.
www.nchsd.org
Technical Assistance Collaborative
TAC is a national non-profit organization that works to achieve positive outcomes on behalf of people with disabilities, people who are homeless, and people with other special needs by providing state-of-the-art information, capacity building, and technical expertise to organizations and policymakers in the areas of mental health, substance abuse, human services, and affordable housing.
www.tacinc.org
Time Bank/Service Exchange Programs
Lynn Time Bank
Members of the Lynn Time Bank are reaching out to the community of Lynn, Massachusetts, connecting people with each other, and setting up service exchanges so people can help others AND receive help.
www.lynntimebank.org
Time Dollar USA
Time Dollar USA’s mission is to build local economies and communities that reward decency, caring, and a passion for justice. Time Dollars USA seeks to build local economies and communities that reward decency, caring, and a passion for justice by developing, testing, and assisting experiments with a new medium of exchange called Time Dollars™ (also known as service credits or time banking.) One hour helping others equals one Time Dollar.
www.timedollar.org
Transportation
Easter Seals Project ACTION
Funded through a cooperative agreement with the U.S. Department of Transportation, Federal Transportation Administration,
Easter Seals Project ACTION promotes cooperation between the transportation industry and the disability community to
increase mobility for people with disabilities under the ADA and beyond. Easter Seals Project ACTION offers various resources, as well as training
and technical assistance, in an effort to make the ADA work for everyone, everyday. More than a dozen years after its
creation, its goal - and its name - remains unchanged: Accessible Community Transportation In Our Nation (ACTION).
projectaction.easterseals.com
Federal Transit Administration Office of Civil Rights
The Federal Transit Administration works to ensure nondiscriminatory transportation in support of its mission to enhance
the social and economic quality of life for all Americans. The FTA Office of Civil Rights is responsible for civil
rights compliance and monitoring to ensure non-discriminatory provision of transit services, including portions of the Americans
with Disabilities Act of 1990, which prohibits discrimination and ensures equal opportunity and access for persons with
disabilities.
www.fta.dot.gov/civil_rights.html
Federal Transit Administration's ADA Website
The Federal Transit Administration's Americans with Disabilities Act of 1990 (ADA) Website offers information on ADA technical assistance; FTA ADA compliance; FTA ADA programs;
ADA regulations, guidance, and procedures; and past ADA events.
www.fta.dot.gov/ada
United We Ride
United We Ride is an interagency Federal national initiative that supports States and their localities in developing
coordinated human service delivery systems. In addition to State coordination grants, United We Ride provides State
and local agencies a transportation-coordination and planning self-assessment tool, help along the way, technical
assistance, and other resources to help their communities succeed.
www.unitedweride.gov
Work-Related
Employer Assistance Referral Network
The Employer Assistance Referral Network is a free, nationwide service that connects employers with job placement professionals who can identify qualified candidates with disabilities for their job openings in the company's geographic area.
www.dol.gov/odep/programs/earn.htm
Healthy and Ready to Work
The Healthy and Ready to Work initiative promotes a comprehensive system of family-centered, culturally competent, community-based care for children with special health care needs who are approaching adulthood and may need assistance in making the transition from pediatric to adult health care and to postsecondary education and/or employment.
www.hrtw.org
Job Accommodation Network
The Job Accommodation Network (JAN) is a service of the Office of Disability Employment Policy of the U.S. Department of Labor. JAN's mission is to facilitate the employment and retention of workers with disabilities by providing employers, employment providers, people with disabilities, their family members and other interested parties with information on job accommodations, self-employment and small business opportunities and related subjects.
www.jan.wvu.edu
MassWorks
MassWorks.org is an online resource for those looking to improve community employment experiences for individuals with disabilities. Developed for the Massachusetts Medicaid Infrastructure Comprehensive Employment Opportunities Grant by the Institute for Community Inclusion, this site is designed for professionals who provide employment services and supports to individuals with disabilities. Employment support professionals, job seekers, and educators can download templates, checklists and guides that give structure and purpose to providing employment supports.
www.massworks.org
Recruiting and Hiring Practices
This page on the Department of Labor, Office of Disability Employment Policy Web Site provides links to information on how to find qualified applicants with disabilities and comply with laws protecting people with disabilities in the workplace.
www.dol.gov/odep/business/recruiti.htm
START-UP USA
START-UP / USA provides technical assistance and disseminates resources nationally to individuals interested in pursuing self-employment. START-UP / USA is funded by a cooperative agreement from the U.S. Department of Labor, Office of Disability Employment Policy. Congress designated the cooperative agreement funds to further development of self-employment as an employment outcome for individuals with disabilities.
www.start-up-usa.biz
TeleworkTools.org
This website is an introductory gateway into the world of Telework for interested jobseekers, service providers, and employers in the United States. TeleworkTools.org provides informational tools, tips, and resources specifically for individuals with disabilities. TeleworkTools.org was developed by The WorkPlace, Inc., funded by a cooperative agreement from the U.S. Department of Labor, Office of Disability Employment Policy.
http://teleworktools.org
Workforce Recruitment Program
The Workforce Recruitment Program for College Students with Disabilities is a free, nationwide database of pre-screened, qualified postsecondary students and recent college graduates with disabilities who are available for permanent and temporary positions. Employers can search the database by state or job category and obtain specific information on candidates' qualifications.
http://www.dol.gov/odep/programs/workforc.htm
Workplace Supports and Job Retention
The purpose of the Virginia Commonwealth University Rehabilitation Research and Training Center (RRTC) on Workplace Supports and Job Retention is to study those supports that are most effective for assisting individuals with disabilities maintain employment and advance their careers. The primary stakeholders for this project are persons with disabilities, with an emphasis on those individuals from traditionally underrepresented populations with diverse racial and ethnic backgrounds. The resources on this Web site are materials and information that facilitate employment and job retention for individuals with disabilities, including new knowledge gained from the Center's research activities.
www.worksupport.com/resources/index.cfm
About Resource Links
**Links from the Family Support Website are provided for informational purposes only. A link does not constitute an endorsement of content, viewpoint, policies, products, or services of that Web site by the Administration on Developmental Disabilities. Once you follow a link to a Web site, you are subject to the terms and conditions of that Web site.Click here to return to the Categorical Listing.
|
